Blog

Sami’s New Bike!

Last week we were thrilled to provide a local CT girl with a specialized bike which will help strengthen her legs (and might be fun too!).   Sami is an 18 year old who has had seizures since birth.  She is developmentally delayed and mostly non-verbal, but has a handful of words. She needs assistance with all aspects of daily living skills.

SamiSami is mobile but over the past few years her knees have “collapsed” inward requiring physical therapy and exercise.  The bike we purchased will be a highly motivational and effective way to strengthen Sami’s legs in the proper alignment.

One of Sami’s favorite places to use this is at the mall, where...

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Help Us Help Ryan! Silent Auction Fundraiser set for Nov. 7th

MATMF Ryan pumpkinRyan is a beautiful nine year old boy from Bristol, CT who is non-ambulatory and non-verbal. He lives with his parents and brother in a two story, cape-style home that needs to be renovated to meet his needs and growing body.  Currently there is only a full bath on the second floor and Ryan needs to be carried there to be bathed.  As his weight climbs to over 50 pounds this task is becoming more and more difficult (see video)

Ryan’s parents are hoping to renovate a small half bath on the first floor as well as Ryan’s bedroom which is already unable to hold his entire medical and mobility...

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A New Wheelchair for a Very Special Boy!

In the summer of 2013 the Foundation was pleased to purchase a wheelchair for Eduardo, a six year old RMATMF Eduardoidgefield boy who was born with SMA Type 2.

Spinal Muscular Atrophy (SMA) is characterized by progressive muscle weakness from degeneration and loss of the lower motor neurons in the spinal cord and the brain stem nuclei. Poor weight gain, sleep difficulties, respiratory complications, joint contractures and paralysis are common complications. There is no cure.

Despite his diagnosis, Eduardo is just like his first grade peers. He loves Legos, museums and art. He plays baseball with the Holland League, rides horses at Pegasus and swims.  He has a beautiful spirit and...

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